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February 23rd, 2010 (11:53 pm)
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Sorry, folks.

I'm dealing with health and housing issues still.

I've handed over the housing issues to rat because it stresses me out too much. I refuse to look at houses anymore until he finds something we can afford AND is mostly perfect.

The neurologist says I have two types of neuropathy. After purchasing the drugs, I am currently refusing to take the Cymbalta until all tests are complete and we talk about it. Currently my pain level is not bad, which would be why I'd take it but the side-effects, weight gain and tapering issues SCARES THE FUCK OUT OF ME.

The 'cure' I want is something physical like therapy or surgery, NOT anti-depressants for pain and that's the only solution that can be offered.

I miss my dolls and sadly, reading about other people with theirs can be very depressing.

I want my life back to normal.

Comments

Posted by: The Wolves' Den (wolves_d3n)
Posted at: February 24th, 2010 09:23 am (UTC)

I take cymbalta, have for a couple of years now. If you have any questions, please let me know.

To be honest? I think it might be good for you. It would probably take the edge off some of the anxiety you've been dealing with. It doesn't 'alter' me in any way, but it's like it increases the size of my coping bucket, if that makes sense. lol. I can deal with things more easily without flipping out or feeling overwhelmed.

As far as tapering, yes there are some issues if you start missing pills. Although I can miss a day without any real issues. Weight gain. Hm. Well, I have a lot of other issues that screw with that. The female kind. So I can't speak to it readily. I do know my mom actually lost weight while taking it, though.

Posted by: onnas_baka_gaki (onnas_baka_gaki)
Posted at: February 24th, 2010 10:34 am (UTC)
Hands - Shuichi and Eiri

May I ask you how many mg you take every day?

The neuro said I should look into getting into a support group but I told her I already HAD one with my online friends.

The support boards out there make Cymbalta sound like a horrible thing with the weight gain and feeling fuzzy, like the Prednisone withdrawal shit I went through.

Posted by: The Wolves' Den (wolves_d3n)
Posted at: February 24th, 2010 11:06 am (UTC)

Sure! I take... *looks it up* 60mg.

Ugh, I'm not a big fan of support groups. But I'm usually not too shy about talking if I need to. Be it with online friends, local friends or just my mom. I think you may be the same way so I'm not sure it's really necessary.

The only thing that makes me feel fuzzy is the fact that I sleep deprive myself. I love getting off work at 3pm, but getting up at 5 tends to make me try and run on not enough sleep. ~_~ But I have ups and downs, highs and lows. I'm not in a permanent valium fugue or anything. It just makes it easier to re-center myself instead of swinging wildly between the ends of the pendulum. I don't take it for neuropathy, but I have a tendency towards Plantar fasciitis and that doesn't bother me at all when I'm on my meds.

Posted by: onnas_baka_gaki (onnas_baka_gaki)
Posted at: February 24th, 2010 10:18 pm (UTC)
Hug - Eiri and Shuichi

Thanks for letting me know your dose! That's what she had originally planned for me but after talking to her today I'm not going to take any, especially since I'm not really in any serious pain at the moment.

All of YOU are my support group. Your feedback has helped.



Posted by: kerikochan (kerikochan)
Posted at: February 24th, 2010 01:34 pm (UTC)
Cain

sounds like we need to plan a dolly meet in Richardson (even a mini one) so you can get your dolly fix. ^_^

As for medical issues, I have some new meds I'm taking that give me crazy nausea so half the time I refuse to take it. So I can kinda empathize with crap side effects from medicine. I am quite surprised that the docs said physical therapy wont help you. I can ask my mom (a speech pathologist who works closely with PTs and OTs) if she knows of anything that PTs or OTs do for patients with chronic pain.

Posted by: kerikochan (kerikochan)
Posted at: February 24th, 2010 01:38 pm (UTC)
Cain

BTW my mom (63) also takes Cymbalta and let me tell you, its like night and day! She's bipolar but it really helped with the cycling and certainly enabled her to handle problems better. This is after her trying Lithium, Prozak and Welbutrin (sp?).

I don't think she experienced any weight gain, of course when she was in her lows she'd comfort eat so if anything I'm sure the Cymbalta helped deter that. ^^;

If you have any questions I can ask her. ^_^

Posted by: onnas_baka_gaki (onnas_baka_gaki)
Posted at: February 25th, 2010 01:24 am (UTC)
Hug - Eiri and Shuichi

I wouldn't use Cymbalta for depression but for pain, which makes me very leary. Prednisone is for pain and it's evil incarnate. I think the Pred side-effects while on it helped kick this into gear and the withdrawal just made the neuropathy kick in.

Posted by: kerikochan (kerikochan)
Posted at: February 25th, 2010 11:14 am (UTC)

I'll ask my mom about Tapping and the Nerve Support Forumla. She's been in her field for nearly 40 years so I'm sure she's heard of SOMETHING for chronic pain.

Let me know when and where you'd like a meet up! The dolly market idea steamed from you actually. ^_^ I hope you can either come to the one in March or one of the later ones.

Well if it comforts you at all, when you have to move again you know some good people to call upon. ^_^

Posted by: onnas_baka_gaki (onnas_baka_gaki)
Posted at: February 26th, 2010 02:11 am (UTC)
a need to rest

I'd appreciate you asking your mom about both. Tapping is more for depression so I use it when I start feeling a little anxious.

Definitely need a mini-meet after the Olympics are done with.

Yes, it DOES comfort me a LOT to know you are all there to help us again. But honestly, I want to unpack and settle for a little while. I know living in boxes is partly to blame for my stress, along with all the rest. I refuse to deal with looking at houses now and my stress levels have decreased dramatically.

However, today the neuro looked at my initial EMG/NCS test results and said I was worse than she thought. Thanks for more stress...

I can only hope she thought I wasn't very bad off initially and that I'm not too bad on the neuropathy scale.

I am determined to get better but disheartened by the facts about neuropathy.

*hugs*

Posted by: kerikochan (kerikochan)
Posted at: February 26th, 2010 11:46 am (UTC)

I talked to my mom last night. She said that Cymbalta is more commonly used for pain than depression and that it helps with her mild aches and pain. Enough that she notices when she forgets to take it because she starts to hurt again. She also said she didn't notice any adverse side effects, not even weight gain.

I also asked her about using PT for pain and she said there are various ways. So PT will hopefully be an option for you in the future. She also mentioned using TENS therapy.
http://www.healthscout.com/ency/68/240/main.html
She said it was similar to an E pack? I'm not sure what that is.

I hope that helps. ^_^

Posted by: onnas_baka_gaki (onnas_baka_gaki)
Posted at: February 26th, 2010 02:37 pm (UTC)
Hands - Shuichi and Eiri

Yes, it helps a LOT.

I've read a lot about a lot of problems with Cymbalta and since I'm so sensitive to medication, it scares me. Losing feeling in my body is currently scaring me more, though.

Could you please ask your mom how many mgs of Cymbalta she takes a day? My neuro prescribed 20mg for two weeks, then 30mg for two weeks then 60mg for two weeks.

And how is her drug sensitivity? I have to be watched to make sure my reaction is not too bad.

After I see the neuro in two weeks I hope I get a better idea what to do. B12 is probably something I'll need to do.

Edited at 2010-02-26 05:38 pm (UTC)

Posted by: kerikochan (kerikochan)
Posted at: February 26th, 2010 03:36 pm (UTC)

I'll call her tonight when she gets off of work and ask about dosage and sensitivity.

I take B12 supplements! I'm a bit defficient as it is and the new meds I'm on makes me even more so. My doctor recommended the liquid kind (the sublingual stuff). Its supposed to be higher efficiency than the pills. It has done wonders for my energy level. I'm a big fan of vitamin supplements over other pharmaceuticals (if that option is available).

Posted by: onnas_baka_gaki (onnas_baka_gaki)
Posted at: February 27th, 2010 01:22 am (UTC)
Owww! - Talon

Thanks again, K. You make me cry with happiness because you have been so helpful to me.

I'm still going to try to avoid the drugs, if possible. Though I was tempted today since more areas of my feet have decided to go numb for the first time ever today. Naturally, it's the weekend and going to the ER wouldn't do me any good. I just have to wait for the test results to get done.

C got me some B complex tonight. I lost a lot of my dinner tonight due to a calcium pill gagging so I took another one. So I'm trying to get back to my vitamins and other supplements again.

Are you doing calcium with D? If not, I highly recommend it. It is also known to help you lose weight - it did for me!

Posted by: kerikochan (kerikochan)
Posted at: February 27th, 2010 04:03 am (UTC)

oh snap! taking calcium helps with weight loss you say?! I may be making a trip to CVS tomorrow. ^_^ Thanks for the heads up! The meds I'm currently taking is helping with my body to use the sugar I eat more effectively. I never knew before that after eating a meal you aren't supposed to get an intense sugar rush then crash hard after about an hour. It wasn't until about 2 days ago I realized this (as the meds have allowed me to eat and have energy, no rush and no crash) that I turned to Kyle and was like "is this what its like you?". He was just kinda like "umm yes." ^0^
Still anything to aid in pre-Japan weight loss and a vitamin at that is something I'm willing to try! Thanks!!

I wasn't able to call my mom tonight, but I'll try again tomorrow. ^^;

Posted by: onnas_baka_gaki (onnas_baka_gaki)
Posted at: February 27th, 2010 11:53 am (UTC)
Garnet

Yes. I didn't know about it until after I noticed it was happening and there was a news story about it on TV. I was taking 1200 Calcium citrate with D a day for my osteoporosis. Citrical

I stopped a year ago (along with all my other supplements) when I needed to see what was going on health-wise and was choking when I took them. I'm going to get back on it, but will probably need to cut the pills in half to make them easier to swallow.

My mouth is so dry due to the neuropathy so food sticks, even when I drink a lot and take a drink before eating something.

http://www.webmd.com/diet/news/20000417/calcium-low-fat-diet

http://weightloss.about.com/cs/eatsmart/a/aa051603.htm

http://thyroid.about.com/cs/dietweightloss/l/blcalciumdiet.htm

Posted by: onnas_baka_gaki (onnas_baka_gaki)
Posted at: March 2nd, 2010 02:29 am (UTC)
Yuki

More about B12 - take it on an empty stomach and don't eat until an hour after to insure it gets absorbed.

More later - I'm exhausted from doctor stuff today and still have to do more tomorrow.

Posted by: onnas_baka_gaki (onnas_baka_gaki)
Posted at: February 25th, 2010 01:21 am (UTC)
Yuki

Doll therapy would be good. Being around people I trust and will help me talk through this helps, too. Thanks for being here.

Currently I'm not really in pain but being irritated by the shooting pins and needles in my feet. And I hate the anxiety that's illogical.

No, the docs haven't said physical therapy won't help me. They just aren't willing to give it to me at the moment. The neuro wants me to exercise and try yoga or swimming (hate swimming).

Is your mom familiar with Tapping or WSN® Nerve Support Formula?

I've started doing tapping which helps sometimes. I think I just need to do it over and over in one session to help.

I'm also going to look into WSN® Nerve Support Formula.

Posted by: richila (richila)
Posted at: February 24th, 2010 02:55 pm (UTC)

First of all {{{Hug}}}
I took Cymbalta for a couple of years, but have stopped recently. The tapering wasn't bad. If you take any medication for migraines, there are some it is incompatible with. It really helped me when I started using it, I couldn't focus or cope at all. It helped me find that place where I could organize my thoughts and do what I needed to do. Without Cymbalta, I don't think I would ever have been able to start writing again and my soul needs to write.
Before Cymbalta, I had gotten to the point that I couldn't even read a novel; I couldn't focus well enough to keep track of the plot. I was drowning in all the tiny decisions of dailylife; Cymbalta was my lifesaver.

Posted by: onnas_baka_gaki (onnas_baka_gaki)
Posted at: February 25th, 2010 01:26 am (UTC)
Thoughtful - Eiri

Glad to hear it worked for you. You might want to post your positive reaction to some of the Cymbalta boards, where most responses are negative.

Posted by: janendra_esdios (janendra_esdios)
Posted at: February 25th, 2010 11:21 am (UTC)

A big hug for you.

Posted by: onnas_baka_gaki (onnas_baka_gaki)
Posted at: February 26th, 2010 02:11 am (UTC)
a need to rest

Thanks. I really need it.

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